Together We Choose To Fight …
20 May 2020
I had a chance to speak with Tom Barnard a couple of times this week, sharing some thoughts on my experience with leukemia, how disruptive that was as a 20-year-old college student, and how I chose to tackle adversity by focusing on the moment, on making sure every day you have a hundred percent chance of making it to the next one. You can listen to both conversations here:
17 May 2020
So now it’s time to take a deep breath and extend my heartfelt thanks to everyone who helped make these past ten weeks so incredibly successful. You can still donate to The Leukemia and Lymphoma society for the next month – up until the date of our rescheduled (and now virtual) Grand Finale Gala on June 20th. I look forward to sharing more details then about how much of an impact we’ve collectively been able to make toward helping fund critical support, services, and research for blood cancer patients.
Thank you, thank you, thank you.
19 April 2020
The world is in an entirely different place than it was when this campaign started in early March. It is impossible to ignore the impact COVID-19 is having on all of us, and cancer patients in particular. Here’s an excerpt from Chapter 10, words about the early days of my battle with leukemia that are still relevant this many years later:
“See, there are all sorts of sick people in emergency rooms. Coughing, sneezing, wiping their hands on door handles or couch cushions or whatever. When your immune system isn’t doing much of anything in the way of fighting infections on its own, it is not a good idea to place yourself into the middle of that environment.
In many ways, I’m already starting to learn, a hospital is the absolute worst place to be when you’ve got leukemia. But a hospital is also the absolute best place to be, for obvious reasons. Leukemia can be pretty messed up that way.”
This is the challenge. You have to learn to adapt, suddenly, to a set of circumstances you never asked for, facing all kinds of fear and uncertainty, all while trying to make informed choices about what’s best for your health. None of this is easy. I’m proud that LLS continues to be a champion for blood cancer patients during these trying times:
- by providing much-needed financial aid in response to COVID-19
- through specific webinars on COVID-19 to help calm fears and anxieties
- and from trained information specialists who are available to talk or chat throughout the day to answer any questions and alleviate any concerns
It’s hard to imagine what our new normal is going to look like, or how long it will take for us to get there, but I’m confident that we’ll make it through this together.
05 March 2020
I was only 20 years old when I was diagnosed with acute myeloid leukemia. According to current literature from The Leukemia & Lymphoma Society, “AML is a difficult disease to cure. A few decades ago almost no adults with AML were cured.” Even today, overall five-year survival rates for AML are only only marginally better than they were in 1990.
I was one of the lucky ones. For that – and for three subsequent decades without any lingering complications or long-term health issues – I will always be incredibly grateful.
To celebrate my thirtieth “cancerversary,” I’ve chosen to take on another ten week fundraising campaign on behalf of LLS. In 2016, I competed against local candidates in Minnesota and was named Man of the Year. This year I’m representing the Minnesota, North Dakota, and South Dakota Chapter in a national All-Star Man & Woman of the Year fundraising competition. Every dollar counts. The money raised for LLS goes toward vital research, patient services, and government advocacy.